After waking up with a painful swollen nose Kaz, 46 of Australia, was diagnosed with Relapsing Polychondritis.  She had experienced a bout of scleritis months earlier. 

 

Her diagnostic journey has included visits to a myriad of specialist, because RP can effect many body systems, including dermatologists, surgeons, ear nose and throat specialists, neurologists, rheumatologists, pulmonolgist, gastroenterologist, and immunologists. 

 

Sadly, a year later, at age 47, Kaz states her RP is not under control and she continues to experience pain and low-grade fevers daily.  She has been admitted to hospital multiple times, the longest lasting 11 days.  She continues to search for an effective treatment.   

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