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Whether you are a patient, carer or medical professional, you will find a wealth of information and helpful resources here. 

Stethoscope on the Cardiogram


   The aim of this website it to share information about this rare disease and offer support to those living with RP or struggling to get a diagnosis. 


   Some of you may already know us from one of our Facebook Groups which have over 2,000 members and we want to thank you for coming to take a peek at our website. 


   We hope you will become regular visitors and that we can to know all of you RP’ers out there - we are sure there are many more of us yet to be diagnosed!

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