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INFORMATION
& RESOURCES

Whether you’re newly diagnosed, an experienced patient, or a spouse or family member, we’re here to help you find the information you need.

RESEARCH PAPERS.

Keep up-to-date with the latest research on RP. We'll continue to update this resource as more research becomes available.

LINKS.

There are a number of on-line support groups, charity websites and forums that make up our Global Community which you may like to join. Whilst the main Administrators of individual Facebook groups are based in specific countries, we find that people join a few groups across countries to take full advantage of discussions across the world.
 

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Other useful links:
 

VIDEOS & MEDIA.

A curated selection of videos and images including webinars, informational videos and personal accounts.

LIVING
WITH RP.

Hear the inspiring stories of real patients who have been diagnosed with RP.

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