MEET
THE TEAM
Meet the staff, volunteers, trustees and patrons who make up Relapsing Polychondritis Awareness & Support.
BOARD OF TRUSTEES.
Chair
Lisa Matthews
Lisa joined the Board of Trustees in 2024 and also an ERN ReCONNET ePAG representative for Relapsing Polychondritis (RP) and represents Relapsing Polychondritis Patients in Europe. After over 20+ years in Human Resources, Lisa’s health deteriorated and after seven years of investigations, she was eventually diagnosed with Relapsing Polychondritis. This meant that her career in Human Resources was cut short and once recovered from her surgery, she wanted to raise awareness of Polychondritis and support others through their diagnosis. Lisa continues to advocate for all patients with rare diseases.
Trustee
Amanda Jones
Our Trustee Amanda has been living with RP since being diagnosed in 2016 along with other illnesses. She is an author, editor and proof reader. She is also a professional graphic designer and loves art, music and creativity. Her book ‘Kathleen’ published in 2024 is about caring and living with her disability. Qualifying as a Peer Leader for NHS England Amanda works nationally with the community, medical professionals, researchers, charities and patients; advocating and sharing our patient and public voices to improve care. Working with her local community in Devon she also volunteers for Transition Town Okehampton and other charities. Having had a long diagnosis delay like so many of us Amanda is passionate about improving our quality of life.
Trustee
Dr Claire Macnab-Wilson
Claire joined the board of trustees in 2024. She is a Consultant Clinical Psychologist working in Scotland. She has a professional interest in the delivery of high standards of healthcare with patient involvement at the heart - ensuring individual's preferences, needs and values guide clinical decision making.
After experiencing years of various symptoms without an apparent explanation, Claire was finally diagnosed with Relapsing Polychondritis (RP) in 2021. She is keen to make a contribution to the RP community by supporting and driving the aims and values of the charity to influence positive change and to improve the overall quality of those who live with the condition.